I cut my younger son's hair over the Christmas holidays. Gary spotted electric trimmers going cheap in Woolworths and brought them home, so both he and Lewis ended up with really short cuts.
Lewis, the one with Aspergers (Special Needs Showdown - sorry you have to scroll down a bit there) was until recently known simply as a difficult child. This got me into the habit of giving him Christopher Robin style haircuts, short back and sides but really quite long on top, for social reasons. Putting it bluntly I used every means I had to inspire teachers to query whether there was a real child with a real heart in there after all. I'll try and find a piccy.
When we first cut his hair really short, even I had a shock, as Christopher Robin became Eminem, to look at. Fantastic. I'm praying for the base line I shaved in around his ears to grow out a bit before I have a chance to present him to the special needs experts who have never met him but have decided that he doesnt need a SEN statement. I'm sorry to say it but the look, on his face at any rate, screams 'problem child'.
Phrenology went out of fashion when the Nazis took a really big interest in it and because of that I dont think its ever been properly researched, but like any idea that sticks, however crass and offensive and obviously outdated many of the common impressions are, and in this case think of the condemnation of people whose eyes are supposedly 'too close together', there has to be a grain of truth in there somewhere for it ever to have got off the ground in the first place, instead of being laughed into oblivion.
We were watching a documentary on Pink. I dont go in for documentaries or pop extravaganzas, but for Pink I'll make an exception; I love her music and the way her mind works. Gary's sitting there beside me going "Shes ADHD she's ADHD" and looking at how she explained difficulties with her family, the kind of independent stuff she got up to at such a young age, hearing their completely different view, just as valid, I could see that he might have a point, but Gary being Gary wasnt really listening as it turned out; he had simply caught a good shot of the bridge of her nose. He has this armchair theory that perception differences linked to the frontal lobe of the brain might be magnified by bone growth. To be honest I cant imagine that MRI wouldnt have already confirmed that, if it were true, I mean presumably it would involve more extra bone growth than can be seen from the outside. How thick is a human skull, for that matter?
The lovely South African specialist that diagnosed Lewis' condition made a confession that made me feel a whole lot better. She said she had worked all over, yet had never seen as many cases of Aspergers anywhere outside of the UK.
This set me to considering that, until a couple of hundred years ago, we probably were a fairly inbred bunch of mongrels in the main, predominantly a Celtic/Anglo mix. Surrounded by sea and only ever absorbing invaders, I can see how the gene pool could become if not dangerously singular then at least heavily pocketed with rarified and specific skill sets or conditions. So maybe we DO have the highest number of Aspergers sufferers per capita in the world. All that does is add credence to another postulation that if you looked for adult presentation of the symptoms in our society, the two highest concentrations would be found in the upper classes and the prison population.
Think about it - what are the essential ingredients of either a genius or an atypical eccentric? Obsessive interest in a subject, intense creativity and a very high intelligence. Then add, more in some cases than others, indifference to social cues - a sort of 'being on another level'. Of course, stick the same mind into mainstream school (although teaching methods are at last making allowances), berate the child for disinterest in the full curriculum, ostracise him for being unable to notice the myriad social cues that contain such a hotbed, tell him off constantly for not performing to the impossible norm and he'll end up unfulfilled, lonely, with low self esteem and probably a lot of internalised rage. I'd bet anything that more people have gone through the judicial system since 1910 than in the hundred years before that and I'll bet that the resentment inspired by nationwide classroom schooling was a huge factor. I love learning curves.
To cap it all Lewis is horribly dyslexic. I ought to be panicked for him? Nah, so was Einstein.
P.S. Link to brilliant Aspergers site filched from a really useful blog: GJ Willis' Art Notes. Thanks Gail!
Showing posts with label Special Needs. Show all posts
Showing posts with label Special Needs. Show all posts
06 January 2005
02 December 2004
Special Needs Showdown
Well now I‘m angry. So bloody angry in fact that the adrenalin has jellied my arms and I cant mentally divide fury from panic from desperation. Its like I have slowly and methodically pushed a reluctant elephant uphill for the past three years and somebody’s just suddenly airlifted it back to the bottom. All the physical stress is beginning to register, the sheer bloody exhaustion, on top of the gobsmacking, mindboggling attempts to work out what the hell is going on, and why.
To explain, I produce unusually gifted sons. Actually I suspect my daughters of being slightly other than the benchmark ‘normal’ (I have two of each) and quite honestly, hallelujah for that. It didn’t give the older ones the ‘foot up’ that state school is designed, like the workhouse, to give only to the truly meek and grateful. Streamlining and subject choices and all the things that allow one to concentrate on subjects that excite came far too late for them, but I am not about to rail against our cash starved make-do-and-pray education system in general.
That my twenty-year-old son is ADHD with an initial assessment of Aspergers (probably he has both, the ADHD overrode the other diagnosis simply because the tablets worked) and also dyslexic tendencies is bad enough. That he has a lightning mind that could understand anybody’s office systems, computer network etc in record time, could sell sand to the Arabs and can mend just about anything in the world, yet works as a crab fisherman because that’s the only job where hyperactive tension and a flair for gynaecological language is appreciated if you don’t happen to have any qualifications, well that’s just making the best of a huge waste of potential.
God forbid, in this day and age that you should say that anyone has dyslexia. As soon as ‘being dyslexic’ became something the schools system had to provide for, the State element to age 16 changed their special needs rules and announced that no-one on this earth could be safely said to ‘have dyslexia’, only dyslexic tendencies. So what if your child has very high intelligence, a reading age ahead of his years, yet can spell helicopter by memory but not ‘the’ or ‘cat’, if his appallingly abysmal writing skills fall within the accepted range for his year (rather than for his potential) then you get sod all in the way of help. By the way it does seem that ‘the accepted range’ even through senior school includes completely illegible gobbledigook.
Andrew, my older boy, was expelled at the age of thirteen, in year nine, IN THE MIDDLE of the statementing procedure. As we then found out, early year nine is when most of the ‘troubled’ ones get booted and if your child is not excluded immediately as the year begins there is a snowballs hope in hell of finding a suitable placement in a suitable school.
Handy hint:
How to see if your school has a good caring attitude towards the children as humans rather than data absorption machines – check the number of spare places available in their year nine, coming up to Christmas. If they are packed to the hilt and oversubscribed yet the schools seems happy, you know you’ve found a good one. This is because they end up cheerfully taking on and helping the kids that the bored, self involved, ‘anything for a quiet life, shut up and listen’ type teachers in the other schools have given up on and kicked out. Sometimes all a kid needs is someone to listen, to feel that they are seen as a person and not a half-height annoyance that ought to fade back into the conglomerate creature called the pupils, or else clear off. There are teachers in this world who feel that their break times are for Internet shopping and discussing weekend plans and woe betide the child who interrupts that. I did a stint as a teaching assistant so I can swear to it.
Andrew ended up in a very expensive special needs boarding school. The alarm bells should have gone off when it became apparent they had plenty of spare spaces, although this wasn’t the impression they gave and once the LEA’s money is committed, you are stuck. It was 1997 for crying out loud, not 1897. He lasted less than a year at Philpotts Manor.
When they suspended him they sent him home in the clothes he stood up in. Everything (and I mean everything) else, bought new only a few months ago, ‘disappeared’ and they refused responsibility. Best weekend clothes, full school uniform, PE kit, sports kit, Wellington boots etc and when your child is already 6’ tall with UK size 12 feet we are talking mans clothes at mans prices. Plus, Andrew being Andrew, and impressions being everything to him, he had smuggled all his very best clothes and gadgets to school to try and fit in with the other boys, his home wardrobe was empty of all but tat.
They put him in the top bunk of a tin framed bed that was designed for kids under twelve, so that, as a hyperactive even in his sleep, he was constantly falling to the floor, most times even taking this flimsy contraption and the boy beneath with him. They refused to believe him or the other boys that it was the bed and not his wilful behaviour. Of course the tour we were given showed only the new solid pine beds, all as it turned out downstairs for the younger pupils. In the end they made him sleep on the floor!
They gave him a nasty weaselly housemaster fresh from running a drug rehab in Liverpool or somewhere, who absolutely insisted that everything was deliberate. ’You have forgotten your pencil case again deliberately, have this/that punishment.’ If Andrew protested that it wasn’t deliberate he was forcibly removed from class. He dislocated his shoulder a couple of times, falling out of bed, and this fact was ignored when the housemaster would put him in a half-nelson restraint – he always seemed to pick the bad arm, the slimy bastard.
Yeah right. I knew a man with fists once, used to say I was crying deliberately to wind him up more. That’s blatant criminal abuse, and so was that housemaster’s attitude. A person with ADHD can no more teach themselves to do what their serotonin levels will not allow, than I can stop crying if a man is screaming in my face and has just thumped me one. The abuse is identical in its power crazy evil, soul destroying effect and my Christian principles struggle with ever forgiving the housemaster, much harder to come to terms with than the actions of the comparison male, simply because he took his Hitler sized ego out on a child.
I digress. Andrew’s younger brother, Lewis, aged 10, has just (finally!) gone through the statementing process. He is diagnosed Aspergers and with very strong ‘dyslexic tendencies’.
The LEA is playing a numbers game and, I am told, on the sly, has come up with a note in lieu, probably reasoning that the excellent if incomplete help he gets from his junior school can keep coming from the school’s budget and is ‘good enough’. They agree he has the disabilities, they are just apparently arguing that the school is coping nicely at the top level of SEN care, so there’s no need to bolster that. The shits.
In just over a year my son hits senior school. Having been noticeable (and small and cute) from the off, he has slowly earned a personal understanding with the Headmaster, the Senco, the Caretaker/ maintenance man (a godsend, him) and many of the teachers and classroom assistants, at least the ones that have taught him before. They make room for him, give him leeway, he has his own headphones and his own desk in class, so he can block out noise and distractions in order to do some work. He has had the same classroom assistant for three years and she translates the world for him whilst also translating him for the world. After a long hard struggle for all involved, its lovely. Oh its not perfect, anyone new coming in causes tremendous upset – he cant tolerate change and is obsessive in his habits, is hyper sensitive to humiliation and will take a ‘correction’ from someone trying to be a new broom as an end-of-the-world scenario.
Put that child into a senior school environment, ten times larger and busier. He will need at least the first year to come to an understanding with the personal assistant they give him, if they give him one at all, and if (and only if) he or she is understanding and capable of seeing the world from two angles at once well enough to translate, only if that person intends and is allowed to stick by him through his entire schooling (locally that will be on two sites, with upper and lower school teachers) they still have no hope of saving him from all the mishaps and misunderstandings and attendant feelings of hopelessness and alterations to character and defence mechanisms that will happen in the meantime.
Even if that assistant has, by some miracle, the kind of respectful ear amongst the teachers that one can earn in a junior school, the place is just too big for everyone to be aware of every child with quirks. He already cannot remember the names of the children that like him, we rarely build relationships outside of school because he can never remember the ‘nice child’s name for me to seek them out. Ask him about people that do not like him, or said something mean to him once a year and a half ago and he can quote you chapter and verse; but its not too sensible to do that too often as the depression builds, he cannot see how people can change their minds once they have made a definitive statement. In his head, animosity once expressed, is permanent.
If I walk him to senior school, any senior school, without a statement as rudimentary protection, I am volunteering my own child up to be made into dog meat and a psychiatric client. I wont do it. I am putting this here, now, against the day that I have to take East Sussex County Council to Court, or that they take me to court, for refusing to screw his head up even further by sending him to senior school unprotected. So ESCC education department, on your way home from your nice offices and your nice meeting rooms in your nice cars with your nice paychecks, off to have your nice Christmas, realise that you are, however inadvertently, torturing me and threatening to torture my son in a way that will ruin his life and the family and make hell and Satan himself proud, for the sake of a miserable few hundred quid a term.
I will not have two Mensa candidate sons end up illiterate and on the scrap heap with no education, no self respect, no hopes and no social skills because someone, possibly just one person, wants to box clever with the cash books. You cocked up once; I think it fair to have expected the system to have developed since then.
Aaaaaaaaaaaaaargh!
Tags: Aspergers, ADHD, SEN, School, Statement, SpecialNeeds
To explain, I produce unusually gifted sons. Actually I suspect my daughters of being slightly other than the benchmark ‘normal’ (I have two of each) and quite honestly, hallelujah for that. It didn’t give the older ones the ‘foot up’ that state school is designed, like the workhouse, to give only to the truly meek and grateful. Streamlining and subject choices and all the things that allow one to concentrate on subjects that excite came far too late for them, but I am not about to rail against our cash starved make-do-and-pray education system in general.
That my twenty-year-old son is ADHD with an initial assessment of Aspergers (probably he has both, the ADHD overrode the other diagnosis simply because the tablets worked) and also dyslexic tendencies is bad enough. That he has a lightning mind that could understand anybody’s office systems, computer network etc in record time, could sell sand to the Arabs and can mend just about anything in the world, yet works as a crab fisherman because that’s the only job where hyperactive tension and a flair for gynaecological language is appreciated if you don’t happen to have any qualifications, well that’s just making the best of a huge waste of potential.
God forbid, in this day and age that you should say that anyone has dyslexia. As soon as ‘being dyslexic’ became something the schools system had to provide for, the State element to age 16 changed their special needs rules and announced that no-one on this earth could be safely said to ‘have dyslexia’, only dyslexic tendencies. So what if your child has very high intelligence, a reading age ahead of his years, yet can spell helicopter by memory but not ‘the’ or ‘cat’, if his appallingly abysmal writing skills fall within the accepted range for his year (rather than for his potential) then you get sod all in the way of help. By the way it does seem that ‘the accepted range’ even through senior school includes completely illegible gobbledigook.
Andrew, my older boy, was expelled at the age of thirteen, in year nine, IN THE MIDDLE of the statementing procedure. As we then found out, early year nine is when most of the ‘troubled’ ones get booted and if your child is not excluded immediately as the year begins there is a snowballs hope in hell of finding a suitable placement in a suitable school.
Handy hint:
How to see if your school has a good caring attitude towards the children as humans rather than data absorption machines – check the number of spare places available in their year nine, coming up to Christmas. If they are packed to the hilt and oversubscribed yet the schools seems happy, you know you’ve found a good one. This is because they end up cheerfully taking on and helping the kids that the bored, self involved, ‘anything for a quiet life, shut up and listen’ type teachers in the other schools have given up on and kicked out. Sometimes all a kid needs is someone to listen, to feel that they are seen as a person and not a half-height annoyance that ought to fade back into the conglomerate creature called the pupils, or else clear off. There are teachers in this world who feel that their break times are for Internet shopping and discussing weekend plans and woe betide the child who interrupts that. I did a stint as a teaching assistant so I can swear to it.
Andrew ended up in a very expensive special needs boarding school. The alarm bells should have gone off when it became apparent they had plenty of spare spaces, although this wasn’t the impression they gave and once the LEA’s money is committed, you are stuck. It was 1997 for crying out loud, not 1897. He lasted less than a year at Philpotts Manor.
When they suspended him they sent him home in the clothes he stood up in. Everything (and I mean everything) else, bought new only a few months ago, ‘disappeared’ and they refused responsibility. Best weekend clothes, full school uniform, PE kit, sports kit, Wellington boots etc and when your child is already 6’ tall with UK size 12 feet we are talking mans clothes at mans prices. Plus, Andrew being Andrew, and impressions being everything to him, he had smuggled all his very best clothes and gadgets to school to try and fit in with the other boys, his home wardrobe was empty of all but tat.
They put him in the top bunk of a tin framed bed that was designed for kids under twelve, so that, as a hyperactive even in his sleep, he was constantly falling to the floor, most times even taking this flimsy contraption and the boy beneath with him. They refused to believe him or the other boys that it was the bed and not his wilful behaviour. Of course the tour we were given showed only the new solid pine beds, all as it turned out downstairs for the younger pupils. In the end they made him sleep on the floor!
They gave him a nasty weaselly housemaster fresh from running a drug rehab in Liverpool or somewhere, who absolutely insisted that everything was deliberate. ’You have forgotten your pencil case again deliberately, have this/that punishment.’ If Andrew protested that it wasn’t deliberate he was forcibly removed from class. He dislocated his shoulder a couple of times, falling out of bed, and this fact was ignored when the housemaster would put him in a half-nelson restraint – he always seemed to pick the bad arm, the slimy bastard.
Yeah right. I knew a man with fists once, used to say I was crying deliberately to wind him up more. That’s blatant criminal abuse, and so was that housemaster’s attitude. A person with ADHD can no more teach themselves to do what their serotonin levels will not allow, than I can stop crying if a man is screaming in my face and has just thumped me one. The abuse is identical in its power crazy evil, soul destroying effect and my Christian principles struggle with ever forgiving the housemaster, much harder to come to terms with than the actions of the comparison male, simply because he took his Hitler sized ego out on a child.
I digress. Andrew’s younger brother, Lewis, aged 10, has just (finally!) gone through the statementing process. He is diagnosed Aspergers and with very strong ‘dyslexic tendencies’.
The LEA is playing a numbers game and, I am told, on the sly, has come up with a note in lieu, probably reasoning that the excellent if incomplete help he gets from his junior school can keep coming from the school’s budget and is ‘good enough’. They agree he has the disabilities, they are just apparently arguing that the school is coping nicely at the top level of SEN care, so there’s no need to bolster that. The shits.
In just over a year my son hits senior school. Having been noticeable (and small and cute) from the off, he has slowly earned a personal understanding with the Headmaster, the Senco, the Caretaker/ maintenance man (a godsend, him) and many of the teachers and classroom assistants, at least the ones that have taught him before. They make room for him, give him leeway, he has his own headphones and his own desk in class, so he can block out noise and distractions in order to do some work. He has had the same classroom assistant for three years and she translates the world for him whilst also translating him for the world. After a long hard struggle for all involved, its lovely. Oh its not perfect, anyone new coming in causes tremendous upset – he cant tolerate change and is obsessive in his habits, is hyper sensitive to humiliation and will take a ‘correction’ from someone trying to be a new broom as an end-of-the-world scenario.
Put that child into a senior school environment, ten times larger and busier. He will need at least the first year to come to an understanding with the personal assistant they give him, if they give him one at all, and if (and only if) he or she is understanding and capable of seeing the world from two angles at once well enough to translate, only if that person intends and is allowed to stick by him through his entire schooling (locally that will be on two sites, with upper and lower school teachers) they still have no hope of saving him from all the mishaps and misunderstandings and attendant feelings of hopelessness and alterations to character and defence mechanisms that will happen in the meantime.
Even if that assistant has, by some miracle, the kind of respectful ear amongst the teachers that one can earn in a junior school, the place is just too big for everyone to be aware of every child with quirks. He already cannot remember the names of the children that like him, we rarely build relationships outside of school because he can never remember the ‘nice child’s name for me to seek them out. Ask him about people that do not like him, or said something mean to him once a year and a half ago and he can quote you chapter and verse; but its not too sensible to do that too often as the depression builds, he cannot see how people can change their minds once they have made a definitive statement. In his head, animosity once expressed, is permanent.
If I walk him to senior school, any senior school, without a statement as rudimentary protection, I am volunteering my own child up to be made into dog meat and a psychiatric client. I wont do it. I am putting this here, now, against the day that I have to take East Sussex County Council to Court, or that they take me to court, for refusing to screw his head up even further by sending him to senior school unprotected. So ESCC education department, on your way home from your nice offices and your nice meeting rooms in your nice cars with your nice paychecks, off to have your nice Christmas, realise that you are, however inadvertently, torturing me and threatening to torture my son in a way that will ruin his life and the family and make hell and Satan himself proud, for the sake of a miserable few hundred quid a term.
I will not have two Mensa candidate sons end up illiterate and on the scrap heap with no education, no self respect, no hopes and no social skills because someone, possibly just one person, wants to box clever with the cash books. You cocked up once; I think it fair to have expected the system to have developed since then.
Aaaaaaaaaaaaaargh!
Tags: Aspergers, ADHD, SEN, School, Statement, SpecialNeeds
Subscribe to:
Posts (Atom)